This blog is about my clinical trial experience thus far…
My first part of the day consisted of the finalities of making sure I “pass”
and am indeed sick enough for the trial… I held my breath a bit while the nurse
tallied my points…
I passed! (Is this a good thing I wonder?)
They sent me to the clinical research center where the nurses follow a
recipe (as they said, because they work with 600 clinical studies) as to how I
was supposed to be treated. I received an hour’s worth of infusion and then had
to wait an hour so they could test my blood levels to make sure the drug was
actually staying in my system and doing what it’s supposed to do. This is
actually a really fascinating development in the medical field. Instead of
giving a dosage based on age or weight, drug companies and doctors are looking
at blood levels to give individual dosages to patients. Although they aren’t
doing that in the trial, it’s great to know they might be able to individualize
our care more.
The trial was super easy – all I had to do was lie in bed, watch t.v.,
and ask for any food that I wanted. Pretty sweet deal. It brought me back to my
days of Remicade – being in high school and missing a whole day to pig out and
sleep in the hospital – it’s weird to think about how long ago that was.
I was super hopeful about this medication. I actually feel way worse
today than I had before, but I’m still hoping that maybe my body is just
getting used to having a new drug in my system. This one has to work, it just
does. I don’t care what the Universe says, it better listen to what I say.
No comments:
Post a Comment